Tuesday, October 31, 2006

Should AMD be encouraged?

SINGAPORE: The call by Health Minister to encourage more people to sign for the Advanced Medical Directive (AMD) is timely and laudable. The law had been passed 10 years ago but to date only 4000 Singaporeans had signed up. But why would the government want to encourage individuals to "manage issue of death" - something very private?

Being involved with the health industry, I have the (un)fortunate opportunity to experience what a person goes through in the last few days of their life. Sometimes it pains me to have to do procedure on the patient when I know that such procedures will not make any difference to the patient in terms of eventual outcome of treatment, not to mention the quality of life. Unfortunately most of the time such procedure had to be carried out because of the urging of the relatives; all because of good intentions. Maybe this is due to our Asian cultures of filial piety where the decision to let nature takes its course is equal to loss of filial piety. Such procedures will only cause more unnecessary pain to the patient, not to mention unnecessary cost. So AMD maybe make it easier for relatives to come to a decision without feeling guilty, or as the Minister puts it "not passing the buck".

At the national level, with the limited medical resources, unnecessary prolonging life will take up valuable resources for others who may benefit from such intensive treatment. Resources can be better channel to those who will recover or have an improved quality of life. Although this will raise ethical issues, this is a real concern that needs to be looked into. Between a person with terminal disease and another who only suffers from a reversible condition 'fighting' for that last bed in ICU, shouldn't that precious last bed be given to the patient with the reversible condition? This is precisely what the AMD aims to correct.

However currently it is not easy to sign up for AMD. The process needs two witness of which one must be a doctor. According to the directives, the doctor has to ascertain that the person is of sound mind and that he understands the whole AMD process. The other witness can be anybody but not a relatives or anyone who will benefit from the person's death. While this is done to protect from any abuse, the exclusion of the relative as a witness makes it difficult to get the second witness. In our society, not many people wants to get involved with another's business, especially about death. As such to get that second witness becomes difficult. Maybe the government should address this problem.

The AMD law also assumes that a person will only make an AMD after he is diagnosed with a terminal disease and hence the need for the first witness to be a doctor. However, is this practical? How would one expect a doctor who is treating him to bring up the issue of AMD? From experience, rightly or wrongly, most of the time, the terminal nature of a disease is not conveyed to the patient but to the relatives. A lot of time, the patient does not even know that his days are numbered or what disease he is dying from. If this is the case how best can the AMD be brought up?

Should the AMD be made just like a person making a will? This means that a person can just walk up to a lawyer and signed an AMD or he can signed the AMD in front of any witness as stipulated by the law covering the making of a will. This will certainly make AMD easier to sign up. If the government is worried about unsound mind, then this will only hold true for those healthy individual, not one with any diagnosed disease. The AMD law may be made to parallel the law governing the making of wills.

Some in the society may say that the making of AMD or having the doctor to decide the fate between two persons like the scenario above is amounting to playing God. I would counter such claim by saying that the day medicine was created is the day human beings played God. Like it or not, the act to save a life is as much playing God as the act to stop treatment to save life. If God can choose that a person suffer a sickness, by the same reasoning, God can also choose when a person will die. I have seen enough to know that whatever a doctor do, we are still answerable to God; if the time is up whatever measures taken will not change the outcome.

In conclusion, let me relate my own experience. My father died of terminal cancer. His decline was fast and hence spared the sufferings and agonies that many like him had gone through. Being a doctor, I decided that he should not be given a drip on his last day. It has been 7 years since he passed away. Till today, I sometimes still ask myself if I did the right thing. Deep inside, I know I probably did; but as a son, in a way I feel guilty for having made that decision and wondered whether the drip would have made the difference.Wormie Says blogs

4 comments:

Anonymous said...

AMD is an important move for the government. as you rightly pointed out, there are limited medical resources. especially in a country like singapore, whose population is aging rapidly. if health cost are not carefully managed, we might end up killing ourselves in the long run.

you also rightly pointed that there are no right or wrong decisions - to prolong or not to prolong. it's a difficult decision to make. hence all the more important for the person in question to make that decision when he/she is in good health and state of mind.

something to think about...

Anonymous said...

Is the minister selling a policy because it's just his job to do so. Or does he genuinely believe in the product? If it's the latter, I'd like to know how many ministers/PAPs have already signed the AMD.

Anonymous said...

Dear Anon 2:46 PM

"we might end up killing ourselves in the long run."

I find your comment above pretty ironic. AMD would facilitate us killing ourselves or letting ourselves die if we are diagnosed with a terminal illness and are unconscious?

That will definitely help save health care costs for the other factors of production still able to serve the regime.

Extracted from MOH website:
"New advances in medical knowledge and technology create new choices for both patients and health care givers. Some of these choices raise new problems of ethics and law.

One problem is that modern medical technology can technically prolong life in the final stages of a terminal illness. When a person enters into the final stages of a terminal illness##, medical technology can never arrest the dying process. In such situations where further medical intervention would be medically futile, a decision has to be made for the withdrawal of such futile medical intervention. Some terminally ill persons who are unable to express their wishes at that time, may want to be spared further suffering and be allowed to die naturally, in peace and with dignity.

The law in Singapore allows Singaporeans who wish to make an advance medical directive to do so. The AMD Act was passed in Parliament in May 1996.

# "Extraordinary life-sustaining treatment" is any medical intervention which serves only to prolong the process of dying for terminally ill patients but does not cure the illness on either a temporary or permanent basis.( eg., is the respirator that is connected to a patient to assist him/her to breathe. In certain terminal conditions, a respirator artificially prolongs the life of a terminally ill patient.)

## "Terminal illness" is defined in the Act as an incurable condition caused by injury or disease from which there is no reasonable prospect of a temporary or permanent recovery. For such a condition, death would be imminent regardless of the application of extraordinary life-sustaining measures. The extraordinary life-sustaining measures would only serve to postpone the moment of death of the patient."

Wormie said...

You are correct. AMD allow us "to kill ourselves" if we are suffering from terminal disease or are unconscious. Why would anyone agree to shorten one's life?

One of the many reasons is the poor quality of life that one has to endure because of the terminal disease. Easiest example would be those suffering from cancer pain. No doubt modern technology will prolong the beating of the heart, and alleviating the pain will come with the attendent side effects of nausea, vomiting and generally feeling lethargy. If a cancer had spread to the liver and abdomen, there may be a lot of water in the abdomen (ascites) which will render breathing difficult. In some instances, such ascites is not amenable to palliative treatment because of the associated complications from procedures that will help to alleviate such symptoms. Basically, each procedure only serves to replace one problem with another.

The AMD was set up with these in mind. However how much of it is for altruistic reasons on the part of the government, is anybody's guess. The AMD is probably the next best thing to euthanasia, although some may not agree with me.